Outils de recherche et données

We envision a world where SDS is a manageable condition and all patients are able to live a full life to their full potential. Since SDS is a rare and complex disease, this vision relies on patients, caregivers, doctors, researchers, regulators, and other stakeholders to work together. Please join our Alliance Network and Community today by filling out the questionnaire below. You will be able to share your insights, voice your needs, and draw on the experience and expertise of others. The survey usually takes about 15 minutes to fill out. We cannot wait to welcome you to the network and community.